Tuesday, November 26, 2013

A Little Overdue

It's Been Awhile 

I feel bad that it has been awhile since I've "blogged" or given an update however I have a lot of news. Most of it pretty positive! 

More Talking 

 I am so happy to report that Colton now says "Mama" and "Dada" plus a few more things. Cutting my hours down to just weekends and getting more active therapy has really been working. I've seen so much positive changes in the last month alone and it makes me so happy. To hear my son say "Mama" made me the happiest woman in the world. I truly wanted to throw a parade. Something so many take for granted really made my day. In fact it has been the best thing so far in my life other than the day he was born. It is also awesome to note that we now have a speech therapist on board and she seems to really understand our son well. This makes me happy, we have been so blessed to have every therapist be a wonderful one. 

Neurology Appointment 

 We still are on a waiting list for this but it looks like it won't be much longer. Looking like sometime in late January and while I am nervous about it I would like to try and stay positive and hope that maybe there could be a few answers to things we have been questioning albeit even if they aren't we can at least rule some things out. 

Case Manager For Insurance 

 After the guidance from an amazing woman who works for WAAA (which I have mentioned previously) I demanded that we get assigned a case manager for our son and after much "badgering" we finally have one. She seems to really want to find out everything she can for our son and us. I'm so blessed to continually have so many wonderful and well informed people come into my life. Although we are surely going to have issues with our insurance we at least have found someone willing to go the extra mile for us and for that I am grateful. 

Some Bitter Things 

As with everything in life with the good comes the bad. We are finding out more and more how much Colton is struggling with fine motor skills. It is causing him a lot of frustration which results in more violent meltdown type tantrums. Potty training still seems to be something for the much distant future although we will continue to encourage him but not push it too much. I think that Colton is starting to realize that he can't do several things other children his age can and that hurts me. I feel so much for my child and watching him struggle is hard. I can see how much he wants to ride a trike, to open a door, to color and throw balls like other children his age. He truly is my hero though, he always tries and when he fails even though he has meltdowns often he continues to push himself. Just this last month he began to "scoop and pour", which is something he was really having a hard time with. He has so much drive and motivation, I am such a proud Mama. 

Bright Future 

Colton is making so much progress and I truly believe he will accomplish a lot in his life. He is so brilliant and to live in his world must be incredible. I'm just happy he lets me in it sometimes. The way he sees the world and the patterns he creates are so fascinating and beautiful. I will just continue to advocate for him and be the best I can be for him. I know some who see me in everyday life may see a very tired woman and in truth I am but don't think for a second I am not always trying to be a "Super Mom", I'm just also human. Colton makes everyday worth living, every battle worth fighting. No one makes me smile like he does and I have no doubt he will bring many people happiness. I am so proud of the progress he is making and will continue to make. Thank you all as always for reading this and your continued support.